GOOD MORNING CITY OF DOWNEY (LOOSE REFERENCE TO VIETNAM MOVIE)! And a good morning it surely has been.
Last week was simply wasted. Due to shift changes and location reassignments my workout schedule was substantially disrupted. You have to understand, my life is built on routine. Routine provides structure and structure is the foundation leading towards a goal. No routine no goal.
On top of that I was precluded from pool therapy because some #$@&"g pencilhead, with whom I've never worked, from a department with which I have no involvement, superseded the approval and full endorsement of my Physical and Occupational Therapists, both of whom I have worked with since I entered this joint and know my physicality. As stated, I weighed over 200 lbs. and they were concerned with the therapist's safety during my transfer from the wheelchair to the pool. Good reason in theory bad reason in practice.
I argued that I wasn't dead weight (a person with no body control ) which adds a substantial degree of difficulty and In point of fact, my therapists specifically trained for the transfer. It was executed in the gym and later executed in the field without incident. Bottom line is that before imposing an arbitrary line in the sand restrictions consult with the folks who are hands on: my therapists,
Enough of the Rancho Politic: Despite the want of exercise I was still able to stand essentially without any external support for a brief moment; while leaning on the standing frame I'm able to stand just a little over two minutes. As a side note I'm getting a leg brace for my right knee. I need the support because I no longer have a ACL or PCL from an old injury.
Additionally, I am scheduled to receive two more rounds of the IVIG It is hope this will advance my recovery. Great news given the cost of the treatment. See link below.
Fighting against the odds , I was finally able to increase my leg strength which appeared to have stalled over the past two weeks. I completed five sets with seven plates on the leg press. That's 133 lbs. I'll try eight plates, 153 lbs., later this week . The curve is ascending once again.
And finally, I lost 2-3 lbs., righteous! I'll be conservative and say 2 lbs. I'm now 223 lbs. YOU HEARD ME, THAT'S 80 LBS.!! Now that's RIGHTEOUS!!
The TRIFECTA!
Thanks folks for taking the time to read "THE AGGREGATE EXPERIENCE." If anyone wants more info let me know. I've inserted a link to a National GBS website which highlights current events involving GBS. There are also stories of others inflicted with this dreadful condition. http://www.gbs-cidp.org/
Look forward to hearing any feedback.
Take Care. And remember, it could be worse. Have faith in your own strength. It's the only thing you can truly rely on.
Last week was simply wasted. Due to shift changes and location reassignments my workout schedule was substantially disrupted. You have to understand, my life is built on routine. Routine provides structure and structure is the foundation leading towards a goal. No routine no goal.
On top of that I was precluded from pool therapy because some #$@&"g pencilhead, with whom I've never worked, from a department with which I have no involvement, superseded the approval and full endorsement of my Physical and Occupational Therapists, both of whom I have worked with since I entered this joint and know my physicality. As stated, I weighed over 200 lbs. and they were concerned with the therapist's safety during my transfer from the wheelchair to the pool. Good reason in theory bad reason in practice.
I argued that I wasn't dead weight (a person with no body control ) which adds a substantial degree of difficulty and In point of fact, my therapists specifically trained for the transfer. It was executed in the gym and later executed in the field without incident. Bottom line is that before imposing an arbitrary line in the sand restrictions consult with the folks who are hands on: my therapists,
Enough of the Rancho Politic: Despite the want of exercise I was still able to stand essentially without any external support for a brief moment; while leaning on the standing frame I'm able to stand just a little over two minutes. As a side note I'm getting a leg brace for my right knee. I need the support because I no longer have a ACL or PCL from an old injury.
Additionally, I am scheduled to receive two more rounds of the IVIG It is hope this will advance my recovery. Great news given the cost of the treatment. See link below.
Fighting against the odds , I was finally able to increase my leg strength which appeared to have stalled over the past two weeks. I completed five sets with seven plates on the leg press. That's 133 lbs. I'll try eight plates, 153 lbs., later this week . The curve is ascending once again.
And finally, I lost 2-3 lbs., righteous! I'll be conservative and say 2 lbs. I'm now 223 lbs. YOU HEARD ME, THAT'S 80 LBS.!! Now that's RIGHTEOUS!!
The TRIFECTA!
Thanks folks for taking the time to read "THE AGGREGATE EXPERIENCE." If anyone wants more info let me know. I've inserted a link to a National GBS website which highlights current events involving GBS. There are also stories of others inflicted with this dreadful condition. http://www.gbs-cidp.org/
Look forward to hearing any feedback.
Take Care. And remember, it could be worse. Have faith in your own strength. It's the only thing you can truly rely on.

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